Hello, everyone! Here is the youtube link to the video Makenzie made about Sydney http://www.youtube.com/watch?v=oDaPjFeQADc. Makenzie is Syd's best friend, and she showed this video at the Glee Club concert. Thank you Kenzie - you are so talented!
As for an update on Sydney, Tuesday night she was able to wiggle the toes on her right foot up! Previously she could only move them down, and only if she was having a muscle spasm (she didn't have enough strength to move them on her own without the spasm). Tuesday she wiggled both up and down, and without a spasm! She will continue to work on this to strengthen it, and her next goal is to be able to move her foot at the ankle. She still wears an AFO brace on her lower right leg to keep her foot flexed so she can walk, but we know that with time she will get this functionality back! At therapy yesterday, Jason used "e-stim" (electronic stimulation) to flex her toes. We think this will help her build her muscle strength on her foot, so we are hoping to order an e-stim kit for home. Jason is also having a rep come to one of our therapy sessions to show us options for a better foot brace.
Sydney is doing great! She tries to do her exercise routine twice a day, and walk twice a day. It takes her about 1.5 hours to get through the exercise routine, and then we walk for about 30 minutes. Today she walked a mile in 26 minutes and 26 seconds! She was cruising!
Thank you for all your love, prayers and support!